IDEAL Study: Inviting Dialogue on Experiences of Active Involvement in Long-term Residential Care

The IDEAL study sought to understand the ways residents, family members & staff work together in LTC facilities. This understanding will help inform policy and practice in this area.

Principal Investigator:

Dr. Jennifer Baumbusch, RN PhD

Co-Investigators:

Dr. Alison Phinney, PhD, RN

Dr. Deborah O’Connor, PhD, RSW

Dr. Patricia (Paddy) Rodney, PhD, RN

Dr. Catherine Ward-Griffin, PhD, RN

Funding:

Canadian Institutes of Health Research

Funding Year(s): 2014 -2017

Study Overview:

The purpose of this study was to develop a better understanding of how care is negotiated in long-term care (LTC) facilities. This was a 4-year critical ethnography that aimed to generate a rich, contextualized understanding of the negotiation of care work in LTC and to clarify factors (e.g. policies, best practices) needed to foster supportive collaborative relationships among families, residents and staff and improve the health and well-being of these groups. Specifically, this study allowed for an examination of the influence of socio-political and cultural contextual factors (e.g. Social locations: gender, class racialization; Organizational factors: healthcare funding, provincial policies, LTRC restructuring) on the negotiation of care work among residents, family members and staff.

Knowledge Translation:

Publications:

Baumbusch, J., & Sloan Yip, I. (2022). Older adults experiences of using recreational cannabis for medicinal purposes following legalization. The International Journal of Drug Policy, 108, 103812-103812. https://doi.org/10.1016/j.drugpo.2022.103812

Puurveen, G., Cooke, H.A. & Baumbusch, J. (2018). End-of-life care conversations in resident care conferences in nursing home settings (Letter to the Editor). Journal of Palliative Care 21(2), 125. http://dx.doi.org/https://doi.org/10.1089/jpm.2017.0494

Baumbusch, J., Puurveen, G., Beaton, D., Leblanc, ME, Phinney, A. (2018). Family members’ experiences and management of resident-to-resident abuse in long-term residential care. Journal of Elder Abuse and Neglect, 30(5), 385-401. http://dx.doi.org/10.1080/08946566.2018.1518179

Puurveen, G., Cooke, H., Gill, R., & Baumbusch, J. (2019). A Seat at the Table: The Positioning of Families during Care Conferences in Nursing Home. The Gerontologist, 59(5), 835-844. doi: 10.1093/geront/gny098

Puurveen, G., Baumbusch, J. & Gandhi, P. (2018). From family involvement to family inclusion in nursing home settings: a critical interpretive synthesis. Journal of Family Nursing 24(1), 60-85. http://dx.doi.org/10.1177/1074840718754314

Selected Presentations:

Phinney, A., Baumbusch, J., Beaton, D. (July 24, 2017). Family Care Work in Long-Term Residential Care: A Case Study of Men’s Experiences and Perspectives. Paper presented at the International Association of Gerontology and Geriatrics World Congress, San Francisco, United States.

Baumbusch, J., Beaton, D., Leblanc, ME., Phinney, A., O’Connor, D. Rodney, P., Ward-Griffin, C. (July 26, 2017). Negotiating Care in Nursing Homes: The Experiences of Family Members, Residents and Staff. Paper presented at the International Association of Gerontology and Geriatrics World Congress, San Francisco, United States.

September 2015 Interim Report: Site 1

January 2017 Interim Report: Site 2

Spring 2018 Report: Site 3