The purpose of the CREATE Research Program is to:
- illuminate the contributions of caregivers at all points in the life-span
- examine the impact of caregiving on individuals’ mental and physical well-being
- inform policy and clinical practices to support caregivers.
September 2023: “At the epicentre of the COVID-19 pandemic in Canada: Experiences and recommendations of family care partners of an older person living in a long-term care home“
“We conducted a critical ethnography with 24 care partners who cared or had cared for an older person living in an LTCH in Québec during the COVID-19 pandemic...Care partners experienced a forced separation from the older persons they cared for, which resulted in significant distress. Care, including post-mortem care, was considered inadequate and sometimes even inhumane. Communication was inconsistent, and this variability was also noted in visitation rules. Care partners perceived LTCHs as a neglected community…The results illustrated the essential contribution of care partners, and the supportive actions they recommended must be a catalyst for change toward more humane care in LTCH settings.”
Bourbonnais, A., Lachance, G., Baumbusch, J., Hsu, A., Daneau, S. et Macaulay, S. (2023). At the epicentre of the COVID-19 pandemic in Canada: Experiences and recommendations of family care partners of an older person living in a long-term care home. Canadian Journal of Aging/Revue canadienne du vieillissement. https://doi.org/10.1017/S0714980823000466
Webinar Presentation: “Unpaid family/friend caregiving: Strategies for Mobilizing an Equitable Health Promotion Approach“
“This webinar focuses on strategies for mobilizing an equitable health promotion approach in order to support the wellbeing of unpaid family and friend caregivers. The webinar will begin with an overview by Dr. Laura Funk of the caregiving context within Canada and upstream approaches to supporting the health and wellbeing of unpaid family and friend caregivers. The webinar will also include presentations on strategies for supporting caregiving within rural contexts (Dr. Katie Aubrecht), emergency contexts such as extreme weather events (Dr. Jennifer Baumbusch) and supporting caregivers with grief and loss (Zelda Freitas).”
Healthy Aging Collaborative Online Resources and Education (CORE) Canada (July 6, 2023)
September 2022: “Caregivers’ Concerns About Assisted Living Residents’ Mental Health During the COVID-19 Pandemic: A Cross-Sectional Survey Study“
“Family or friend caregivers’ concerns about assisted living (AL) residents’ mental health are reflective of poor resident and caregiver mental health. COVID-19-related visiting restrictions increased caregiver concerns, but research on these issues in AL is limited. Using web-based surveys with 673 caregivers of AL residents in Western Canada, we assessed the prevalence and correlates of moderate to severe caregiver concerns about residents’ depressed mood, loneliness, and anxiety in the 3 months before and after the start of the COVID-19 pandemic..”
Hoben, M., Baumbusch, J., B. Hogan, D., Gruneir, A., A. Chamberlain, S., Corbett, K., E. Griffith, L., McGrail, K. M., E. Amuah, J., E. Lane, N., & J. Maxwell, C. (2022). Journal of Family Nursing, https://doi.org/10.1177/10748407221124159
October 2022: “Older adults experiences of using recreational cannabis for medicinal purposes following legalization“
“Legalization of recreational, or non-medical, cannabis in Canada in 2018 was followed by significant increase in use among older adults. Non-medical cannabis is often used medicinally in this population for issues such as pain, insomnia, and appetite stimulation. The purpose of this study was to explore new cannabis use among older adults within an evolving socio-legal context.”
Baumbusch, J., & Sloan Yip, I. (2022). The International Journal of Drug Policy, 108, 103812-103812. https://doi.org/10.1016/j.drugpo.2022.103812
August 2022: “Prevalence and correlates of anxiety and depression in caregivers to assisted living residents during COVID-19: a cross-sectional study“
“Family and friend caregivers play significant roles in advocating for and ensuring quality health and social care of residents in Assisted Living (AL) homes. However, little is known about how the COVID-19 pandemic and
related visitor restrictions affected their health and mental well-being. We examined the prevalence and correlates of anxiety and depressive symptoms among caregivers of AL residents during the initial wave of COVID-19 in two Canadian provinces.”
Lane, N. E., Hoben, M., Amuah, J. E., Hogan, D. B., Baumbusch, J., Gruneir, A., Chamberlain, S. A., Griffith, L. E., McGrail, K. M., Corbett, K., & Maxwell, C. J. BMC Geriatrics, 22(1), 1-662. https://doi.org/10.1186/s12877-022-03294-y
July 29, 2022. Vancouver is Awesome (Reporter: Stefan Labbé):
While the early signs of hyperthermia, like heat cramps and nausea, call for oral electrolytes and rest in a well-ventilated or shady place, heat exhaustion or heat stroke requires immediate cooling.
June 24, 2022. The Burnaby Beacon (Reporter: Curtis Seufer):
In total, Burnaby residents will have access to six cooling centres and open-air stations this summer. And while that doesn’t include shaded areas, misting stations, and other outdoor areas the city has highlighted as spaces to cool off, one health expert said there should be more advertised cooling areas for a city the size of Burnaby.
“The number of cooling centres is totally inadequate for a city of [that] size,” said Jennifer Baumbusch
Available at: https://www.cbc.ca/news/canada/british-columbia/culturally-specific-day-programs-improve-seniors-mental-health-but-more-are-needed-advocates-say-1.6429808
June 2022: “Disruptions in Relational Continuity: The Impact of Pandemic Public Health Measures on Families in Long-Term Care“
“Although the value of family caregivers’ involvement with relatives in long-term care (LTC) is well recognized, tensions remain regarding their role. Such tensions were exacerbated during the COVID-19 pandemic as strict public health measures restricted family access to LTC homes. Using interpretive description, we examined the impact of visitation restrictions on family caregivers’ experiences caring for a relative in LTC between March 2020 and June 2021.”
Cooke, H. A., Wu, S. A., Bourbonnais, A., & Baumbusch, J. (2022). Journal of Family Nursing, , 10748407221102462-10748407221102462. https://doi.org/10.1177/10748407221102462
June 21, 2022. The Abbotsford News (Reporter: Sarah O’Leary):
A combination of disability, low mobility and poverty can leave people in dangerous situations, especially during emergencies like wildfires and floods, University of B.C. nursing professor Jennifer Baumbusch told Black Press Media.
June 2022: “Exploring the Impacts of COVID-19 Public Health Measures on Community-Dwelling People Living With Dementia and Their Family Caregivers: A Longitudinal, Qualitative Study“
“Since the onset of the COVID-19 pandemic, community-dwelling people living with dementia and their family caregivers have experienced many challenges. The unanticipated consequences of public health measures have impacted these families in a myriad of ways. In this interpretive policy analysis, which used a longitudinal, qualitative methodology, we purposively recruited 12 families in British Columbia, Canada, to explore the impacts of pandemic public health measures over time.”
Baumbusch, J., Cooke, H. A., Seetharaman, K., Khan, A., & Khan, K. B. (2022). Journal of Family Nursing, 28(3), 183-194. https://doi.org/10.1177/10748407221100284
April 25, 2022. CBC News (Reporter: Baneet Braich):
Past research has shown that attending adult day programs can help reduce stress, and decrease sleeping problems and home behavioural issues, such as agitation, according to Jennifer Baumbusch, an associate professor of nursing at the University of B.C who is researching day programs.”There are huge health benefits.”
February 2022: “Research priority setting with parents of students with learning exceptionalities and disabilities“
“The purpose of this study was to explore the research priorities of parents of Kindergarten to Grade 12 students with learning exceptionalities and disabilities in British Columbia, Canada”
Baumbusch, J., & Lloyd, J. E. V. (2022). British Journal of Special Education, 49(2), 209-229. https://doi.org/10.1111/1467-8578.12405
January 2022: “The unintended consequences of COVID-19 public health measures on health care for children with medical complexities“
“Public health measures implemented in the initial months of the pandemic decreased access to health care services for children with medical complexity. The long-term ramifications of these measures are unknown. Family structure was found to influence decisions to avoid accessing Emergency Department care. Given the volume of services used by these children, paediatric hospital leaders need to take their unique needs into consideration in disaster planning to ensure minimal disruptions in care.”
Baumbusch, J., Lloyd, J. E. V., Lamden-Bennett, S. R., & Ou, C. (2022). Child : Care, Health & Development, https://doi.org/10.1111/cch.12968
January 22, 2022. Capital Daily (Reporter: Astra Lincoln): Since the fifth wave has begun, UBC professor and nurse Dr. Jennifer Baumbusch says there has been a shift in tone. “It’s become more explicit that people with disabilities should be responsible for taking care of themselves by isolating, while everybody else can get on with life.”
January 3, 2022. The Vancouver Sun (Reporter: Denise Ryan): Research examining the impact of B.C.’s essential visitor policy by Jennifer Baumbusch, an associate professor in the school of nursing at UBC, found that “visitation restrictions arising from public health’s pandemic response have unintentionally compromised these familial bonds and access to specialized family care, potentially contributing to further physical and cognitive decline, and distress among residents.”
Webinar panel of speakers: Who cares? Essential care partner do.
The goals of this virtual discussion are to build an understanding of the importance of Essential Care Partners and to consider the lessons learned through this pandemic where the negative impacts as a result of their absence has been clear.
Healthcare Excellence Canada: Canadian Patient Safety Week (CPSW) (October 25 to October 29, 2021)